23 votes

Ankylosing Spondilitis and me - UPDATE 12/16/13!

I was diagnosed with Juvenile Rheumatoid Arthritis at age 4. I have had run-ins and flare-ups in my 35 years, some serious and some fleeting. February 2005 saw me off work for a month with knees swollen the size of cantaloupes; drained three times to levels that astounded my Rheumatologist.

In 2011 I gave up on Medicine and Big Pharma. I was taking Enbrel at $100/shot/week self administered. I decided to make my own cure and became Vegan. I have had very minor if any problems since but for the last two weeks my right elbow has been seized to the hindrance of expansion limited to 150% of 180%. One thing my "condition" has taught me: pain doesn't hurt as bad as a quiet conscience.

Thank you for sharing and caring and letting me be a part of this amazing group of brilliant and world-changing personas.

I love you all.

Peace and Love always.


So the physicians assistant feels my elbow is an injury of the tendon surrounding the elbow (Tennis Elbow), which is causing acute pain in the forearm and is also aggravating the slight onset of carpal tunnel in my right arm. In the past 8 years, this is the FIRST time I've seen a "Physicians Assistant" and have received more positive feedback and care without the mention of drugs...I knew it wasn't related to my "supposed" AS...best news in years and was thrilled he didn't pull out the prescription card.

Trending on the Web

Comment viewing options

Select your preferred way to display the comments and click "Save settings" to activate your changes.

The women in my familly

have fingers that are grotesque looking, all suffer from rheumatoid arthritis. I'm the only one in the family whose fingers do not show the signs of damage. About 6 months ago, my knee started to hurt. When I stand at the kitchen sink and shift my weight onto this knee, it feels like there is nothing between my kneecap and the floor. Anyone who has experienced this knows what I'm talking about, it is a wake up call.

I was reading articles on Lew Rockwell. Daisey Luther covers the non-drug treatment of pain. I had nothing to lose, so some months back, I started taking vitamin D3. None of us get enough exposure to the sun. Read up on it. When I feel the pain in my knee, I take D3 and I am amazed. A few hours later, the pain in my knee is gone. It helped me, and I'd recommend you try it.

Brush your teeth with baking soda. I haven't used toothpaste in years. Rinse your mouth with hydrogen peroxide. I found avoiding toothpaste and commercial mouth washes is a great start.

Be careful with long term use of Ibuprofen, it's hard on the stomach, liver and kidneys.

UPDATE 1/20/14!

The elbow is not better. Waiting on an "expedited" referral to a rheumatologist who has yet to call and confirm an appointment 23 days since the "expedited" referral was sent.

The pain has enveloped my arms, especially both shoulders, my neck as of today, my fingers, wrists and even some discomfort in my knees and hips. I am in uncharted waters. This pain is new and it has been a consistent bitch for over a month.

I have been taking NSAID's (Ibuprofen) for almost 3 weeks with some relief, but it is only masking the pain.

I may be looking into medical marijuana for the pain and ease of the condition but as of now I'm waiting on my "expedited" appointment.

Peace and Love always.

Father - Husband - Son - Spirit - Consciousness

If you can get into a pain specialist,

that might be a good thing to rule out some conditions they handle and that you wouldn't want to have delayed treatment for. People who've had a lot of years of chronic pain can develop complications and they have to be fought hard and fast to keep them from becoming permanent.

Defend Liberty!

Came across three treatments that caught my interest.

1. CMO -actually CMO II ( Cerasomal-cis-9-cetylmyristoleate ). I started it this week.

2. Borax ( Boron ). 1/8 - 1/4 teaspoon in 32 ounces of water.

3. Sodium bicarbonate ( backing soda ) - 1/4 teaspoon in 8 oz water

Both have comments all over the place of truly working "miracles".

The borax has me nervous, but I started yesterday and mix it with the baking soda.

Anyone else try these?

Yes I an using a CM creme.

There are also CM capsules for systemic relief.

I take a supplement that includes 2 mg boron and a balance of other proven essential mineral in safe ratios a day.

I also take 4g Glucosamomine Chondritin, 4g of geleatin, 60mg Manganese, a day.

These are the quantities for 200# and the 90 day remedy.

Proven safe and effective at 3x recommended dose.

I can double down on bad days without worry.

Free includes debt-free!



I use 20-Mule team Borax in

the laundry. And I've used borax under my kitchen sink - the only surefire way I know to kill ants. I just looked and see that it's used in some countries as a food additive (as a preservative), but it's banned for that purpose in the U.S. I hope you checked it out well.

When we try to pick out anything by itself, we find it hitched to everything else in the Universe.
~ John Muir

All I've found is a few web sites that have posters claiming...

All I've found is a few web sites that have posters claiming big results from consuming borax. One was earthclinic.com and the other was something on borax conspiracy. Convincing arguments for taking it. At this point I'm game and am on day two.

Thanks for the reply. Oh, there were actually any more web sites on borax.

Taking 2mg a day here for 200# body weight.

This is a vets formula so borax is added because it works. To much is a waste.

Rare Earth Forbidden Cures Wallah and Ma 1994 lists boron as essential for humans. Boron is needed to to convert cholesterol to testosterone and estrogen.

32 eggs/day or more to provide plenty of cholesterol.

Vets have been curing Pig, Cows, Horses of arthritis since 1958 with nutritional supplements.

$300/month/100# for optimum results. Cut 30% for slower results. Order a pack from me or become my preferred customer to get 30% off. Become a Director for $10 to collect 8% on product you sell.

Follow the program and then decide if you want to re-order. I've been re-ordering for 8 months on auto-ship where shipping is free.

Adding borax (Boron) is good, adding 89 other cofactors makes healing inevitable.

It did for me.

Free includes debt-free!



Father - Husband - Son - Spirit - Consciousness

Assuming you don't have rheumatism, a mycoplasma infection.

And that you are absorbing nutrients and dose per 100# body weight, eliminate plant oils, nitrites and nitrates in processed foods and give up fried foods...

This can be resolved in 90 days for $1,500.

I thought I was well-nourished, I was ignorant. Find out for yourself.

90 for life is that way to avoid the "healthcare" money pit.

Free includes debt-free!


I will be seeing a doctors assistant tomorrow (as my PCP is unavailable for months...whatta joke!) to have my elbow further examined. Peace.

Father - Husband - Son - Spirit - Consciousness


keep this alive!

Father - Husband - Son - Spirit - Consciousness


So this is the second day in which I have taken a new Calcium, Magnesium and Zinc supplement as contemplated in the past but affirmed as feasible by the posts made on this thread.

Within the last two days I feel somewhat better and my elbow has maybe 20% of the pain it did just two days ago AND the flexibility is coming back!

I will say it again...I love you all and thank you for your time in order to help a fellow human being feel and become better.

Father - Husband - Son - Spirit - Consciousness

Healthy Bone and joint pak.

Calcium, magnesium and zinc need 87 other co-factors for full affect.

It also includes Glucogel to rebuild cartilage and connective tissue.

It also includes a topical CM creme for pain relief.

CM capsule for systemic relief.

I've been taking them for 6 months. I would cry if I had to formulate my own solution.

Do one pak, the results, for me, were stunning.

$300 is a small gamble. It's sure bet IMO.

Free includes debt-free!

I don't know

I don't know if this would help, but I have just recently been doing lots of reading on PH levels within the body and the plus and minus of having/not having proper levels.

Our bodies are mostly water and so that stands to reason that proper PH is of the utmost importance.

I presently am killing my cancer with proper diet and immune supplements, but it's been so slow in going ( over 3 years now ) and I am just now coming around to see that PH is a big part in ALL that goes on in the body.

I have ordered alkaline PH booster drops to add to drinks such as water, coffee, whatever to bring my PH up to 7.4 or so, and test strips to see what my levels are before and after, and will see what happens with that.

I am going to be purchasing a water ionizer also.
I found a real good one for $895 which is very cheap compared to most out there.

You may want to read up on this a bit, it just may help!

You have a great attitude!

I pray you overcome this!

" In Thee O Lord do I put my trust " ~ Psalm 31:1~

Keep ideas and suggestions

coming! BUMP!

Father - Husband - Son - Spirit - Consciousness

cold lasers and cannabis

Here's the one i use. they sale them for "vet use" to get around the fda regulations. ebay has some too.

Buy It Now, It’s Legal – Medical Marijuana Cannabidiol (CBD from Industrial Hemp)

Official Daily Paul BTC address: 16oZXSGAcDrSbZeBnSu84w5UWwbLtZsBms
Rand Paul 2016



Tomorrow I start

with Calcium, Magnesium and Zinc supplement in addition to my 1,000 mcg's of Vitamin B-12 and 2000 IU's of Vitamin D3.

Tonight I had 2 eggs for the first time in 2 1/2 years. It felt right and they were Cage-free, Organic, non-antibiotic, GMO-free fed chickens...one exception is ok with me if it aids my health and maintains a clear conscience.

Father - Husband - Son - Spirit - Consciousness


Please consider, obligate herbivores have broad, flat teeth, they chew side to side, and chew and chew and chew and chew, many have multiple stomachs to help them deal with and extract the nutrition. Why all this adaptation? In a word: CELLULOSE. Nothing larger than a bacteria digests cellulose, not even termites, they have bacteria in their gut to digest the cellulose for them. Vegan is great, BUT, our teeth are not designed to break open the microscopic plant cells, each with it's own, individual cellulose walls protecting the precious nutrients within. I am a degreed biologist and have been a student of nutrition for 30 years. Either blend or juice or both. Only a high speed blender, Blendtec or Vitamix (I have owned both and prefer the Blendtec with the Wildside and Twister jars) or slow speed juicer like the Omega 8006 or Huron upright juicer will actually break open those cell walls. Make sure you get Vitamin B-12, some of the Omega 3s and other nutrients not appreciably available from the plant world (http://authoritynutrition.com/5-brain-nutrients-in-meat-fish... not found in the plant world). Supplement the trace minerals ESPECIALLY as the soils plants are grown in are depleted of minerals, these can be found in a product called "Liquid Life" or numerous products made by a company called "Buried Treasures" or others, try to find plant source minerals and not sea sourced minerals, they are more bio-available. Good luck and enjoy health

The things that will destroy us are: politics without principle;
pleasure without conscience; wealth without work; knowledge without character; business without morality; science without humanity; and
worship without sacrifice: Mahatma Mohandas K. Gan

one moment in truth

As a degreed biologist it is interesting to see how similar humans are to all other 'vegan' animals (only one stomach needed as well, cool).
But in 30 years 'studying' nutrition you must have missed out that there are floral gut bacteria to aid in our human digestion, just what you say is needed - although fresh juices make things even easier, especially for those of us who don't get all these awesome gut flora from fermented veggies like kim chee, miso, fermented drinks, grain cultures like kefir, etc.
Also might want to look into how B12 is manufactured by these floral pro-bacteria and sources of the other nutrient (plenty of non-fish choices for the omega fatty acids for those of us to think fish is freakin' gross and stinky).
One moment in truth is worth more than a thousand years in darkness.

No, not unfamiliar, but...

I also know how sadly compromised are the gut bacteria of many, if not most Americans and did not feel it safe to advise someone whom I do not know personally and who has been in the hands of the Main Stream Medical Establishment as much as the individual posting the original query has been to depend on a possibly compromised gut environment to put his well being in trust to it. With respect to the B-12, you are surely aware that, for most people, the gut bacteria that produce the preponderance of B-12 are actually residents of the colon and that, although there is a great deal of B-12 that is excreted with the feces, not being absorbable through the walls of the colon, it is not available to the individual who produced it unless he is fond of eating his own feces: see http://www.ncbi.nlm.nih.gov/pubmed/7354869. And, although there have been found, in VERY HEALTHY individuals, intestinal bacteria in the small intestine that may produce B-12 in appreciable amounts, trusting that there is a sufficient amount in the ilium where it is pretty exclusively absorbed is a patch of thin ice I prefer not to tread upon. Carnosine, for cognitive health, as it's very name implies, is pretty much exclusive to the animal world in terms of food sources, as is Vitamin D3, while the plant source D2 is wholly inadequate in fulfilling the broad spectrum of functions to which D3 contributes. In the fatty acids, the Omegas, ALA is readily available from flax seed, an excellent provider of this Omega 3. The DHA and EPA are a bit more tricky, while there are algal sources of both the DHA and the EPA they are pretty much "farmed" sources and "farming" of natural sea life has not always proven entirely productive of the same quality of end product found in the open ocean and the research is still out on whether the algal sources of DHA and EPA serve for health as well as the freakin' gross and stinky icky fish sources. I'd be more than happy to pursue this further if you wish but I didn't think it necessary to burden those not interested with all this detail.

The things that will destroy us are: politics without principle;
pleasure without conscience; wealth without work; knowledge without character; business without morality; science without humanity; and
worship without sacrifice: Mahatma Mohandas K. Gan

Your compassion

and information overwhelms me! Tears!

Father - Husband - Son - Spirit - Consciousness

A severe calicum deficiency

It's great that you took responsibility for your health care and finally fired those MD's and got off the meds. All they were doing was masking your symptoms, not curing anything.

And you are on sort of the right track with going vegan, but just for your consideration, there are no "long lived" cultures in the WORLD that are vegan. None.

You are experiencing a severe calcium deficiency. Have been since you were 4. RA is an infection of the joints which tells me that your mom was probably severely deficient in calcium while you were in vitro. (a fetus). Your immune system was severely weakened.

Minnow Cycline can clear up the infection, but you need massive amounts of calcium right now. A natural antibiotic called "Killer Biotic FX" is available thru Youngevity. A super liquid calcium formula called "Ultimate Osteo FX" is available thru them also. All organic, GMO free, USDA certified. One liquid oz. will provide you with 1200 mg. of calcium in a colloidal form.

I've had raging osteoporosis in my skull and face bones, tooth decay, sciatica, heel bone spurs, knee, hip, elbow pain, tendon problems, insomnia, Restless Leg Syndrome, irritability, brittle nails, Muscle Cramps, Spasms & twitches,Cartilage & Ligament Damage, and Cognitive Impairment all due to severe calcium deficiency.

Within 3 days of taking the liquid calcium, my foot pain subsided, I began sleeping hard and heavy, feeling 100% rested in the morning. In less than two weeks, the rest of my symptoms disappeared.

I started on those products in June of 2012 and haven't looked back. I eat meat, veggies, fruits, and all the dairy I want... like REAL BUTTER, SALTED, Whole milk, buttermilk, ice cream (homemade with real whipping cream), eggs, sour cream, yogurt and etc...

And I salt everything to taste.

What I avoid like the plague: Fried foods, Wheat, Barley, Rye and Oats, oil of any kind, No well done red meat (rare or medium rare is OK)No Processed Meats with Nitrites or Nitrates (Hot dogs, sausages, baloney, salami, etc…) No Carbonated Drinks within one hour before, during or 1 hour after meals. (Carbonation neutralizes stomach acid) No diet drinks with artificial sweeteners No BBQ’d anything – no blackened meats/veggies – BBQ with foil between food and flame. Carcinogens are deadly. No skin of baked potatoes or sweet potatoes – boiled potatoes with skin ok. No peanuts – all other nuts ok – dry roasted/salted.

I take other essential nutrients available thru Youngevity to round it all out. We need 90 vitamins and minerals. 60 minerals, 16 vitamins, 12 amino acids, 2-3 EFA's (like fish oils, flaxseed oil, borage oils, etc..) You simply are not going to get it thru the food you eat unless your food is grown in soil that has the minerals in it. There are very few places on this planet that have all of it in the soil for the plants and animals. You have to supplement. There is no other way around it.

Good luck, hope I've given you some "food for thought".

Correction, there is only one long-lived culture.

I was thinking about all the long-lived Jaynist, Buddhist, diet-strict monks, and various Hindu cultures which live well beyond normal life expectancy, but then realized I'd ultimately be talking about just one culture...
The vegan culture.

Great post! I agree from my personal experience.

Paul Simon. How long do you think you can run that body down.

I ran my body down 15 years after I could have known better. I didn't know what I didn't know. Now I have to double my dosage to heal the damage I did with those bad foods.

Let's Play Doctor. Drs Wallach and Ma 1997

*No whole grains or extra fiber, they don't help and gently carry away essential minerals.

Free includes debt-free!

I don't know and cannot confirm...

my elbow issues are RA/AS related.

No other symptoms as you've listed. And my choice to become Vegan is a choice of conscience that is irreversible.

I will look into your suggestions as they are greatly appreciated. Thank you for your thought and consideration of me.

Father - Husband - Son - Spirit - Consciousness

reedr3v's picture

Of course I respect

your choice for your own body. But we grow and learn through life, if we live well. I'd hope you could hear, with an open mind, this testimonial from a medical provider. And I fully understand how hard it would be for you to reconsider your long-held dietary belief:

Thank you...

but I cannot go back.

To my death...pro-life and pro-choice in its true form is not human only.

Father - Husband - Son - Spirit - Consciousness