Bush signs S.1858 ; American citizens are now officially exposed to genetic testing,
surveillance and research without their knowledge or consent
Genetic privacy, parent consent and individual self-determination rights are at
stake with the U.S. Senate’s recent passage of S. 1858, the ‘Newborn Screening
Saves Lives Act of 2007.’ This paper outlines five key issues of concern.
Overview
If enacted, S.1858 will nationalize the
genetic testing of all newborn children—and
indirectly their families. The bill and its U.S.
House companion bill, H.R. 3825, will:
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